When You Say No To Support — Mamalode.com
by Patti M Hall
“Through all of this, I stopped knowing who I was. I lost myself. Parents of kids who live with chronic and critical diseases and disorders are not quite whole anymore: they are assemblages of limitless energy, capable of morphing and moulding into whatever the medical system and their child’s symptomology demands. Rare disease Moms are first responders who have a Ph.D in their own child.”http:/http://
You can read my full post here:
