Why Parenting a Child With a Rare Illness Isn’t Easy on The Mighty

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“Eighteen blue, silver and white gift bags, stuffed with contrasting tissue paper lined the table. Aaron and his brother moved from bag to bag, exploring the contents together.

Each bag sported a number from one through 18. He’d made it to 18. We’d made it to his 18th birthday.”

Continue reading the rest of my article on The Mighty here.

 

 

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